This document sets out priority actions to improve early detection, care coordination, and access to innovative therapies for IgA nephropathy, helping slow disease progression and ensure patient-centred care across Spain.
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FAQs
If you are newly diagnosed, living with IgA Nephropathy, or know someone with IgA Nephropathy, you may have questions.
Click here to find answers to the most frequently asked questions
IgAN Awareness Day Infographic
To mark IgAN Awareness Day on 14 May, we are sharing an infographic designed to help raise awareness of IgA nephropathy that remains under-recognised despite its significant impact on patients’ lives. Designed to be shared widely, this infographic aims to improve understanding of IgAN and highlight the importance of greater awareness.
Click here to read more
The Leicester IgA Nephropathy channel
‘Leicester IgA Nephropathy’ is a YouTube channel showing many different perspectives of IgAN. You can see and hear from patients, health professionals and people connected to clinical trial programmes.
Click here to find out more
Setting up a European patient federation
Create a European rare disease federation using this EURORDIS handbook, which offers guidance on finding leaders, mission planning, fundraising, and outreach to unite patient organisations across Europe.
Click here to read the full handbook
The geneTIGA project
EKPF is proud to be part of the EU-funded geneTIGA project, which aims to develop a pioneering cell therapy for IgAN by engineering T cells to target harmful B cells while sparing healthy ones.
Click here to read more
Fatigue & IgAN
This recorded session with Dr Zimmermann explores the often overlooked burden of fatigue in IgAN, offering insights into its causes, impact on daily life, and current approaches to management.
Click here to watch the full webinar!
10 Strategic Keys to Transform the Management of IgA Nephropathy in Spain
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Need help finding the right doctor?
The ERKNet “Find Your Doctor” tool makes it easy. You can type in ‘IgA Nephropathy’ and find specialists in your country who have experience in treating it. This tool is designed to help you connect with the right experts for the best possible care.
