How do you feel? Do you know anyone who really understands your diagnosis and what it means to your everyday life? Believe it or not, but there are thousands of us across Europe – wouldn’t it be good if we could talk?
We’ve set up IgAN Friends because we feel that there’s got to be an easier way to connect with other people living with this rare condition. And between us, there’s a whole wealth of knowledge which we can share to help each other.
Watch the videos below to meet some members of our IgAN community, and hear their personal experiences.
Alister tells us about his diagnosis journey
Akwah talks about how IgAN impacted her pregnancy
Rita talks about maintaining a positive attitude
Alejandro shares his experience of running marathons with IgAN
Jan talks about his experience with dialysis and transplants
Professor Barratt talks about IgAN
Dr Zimmermann talks about ways to manage IgAN
Dr Velo talks about the importance of biopsy