IgAN Friends In-Person Event 2026
Brussels, June 9th 2026
Welcome!
We’re delighted to invite members and friends of the IgAN Friends community to the first in-person IgAN community gathering in Europe. Over the past year, our membership has grown and community activities have expanded, bringing us to a point where coming together in person feels both meaningful and timely as we shape the next chapter of IgAN Friends.
This gathering offers an opportunity to meet others who share the experience of living with IgAN, as well as to connect with healthcare professionals, researchers and patient advocates committed to driving positive change for the IgAN community. It also offers a dedicated space to reflect on what we’ve achieved as a community and explore where we’re heading next. More than a meeting, it’s a meaningful moment for the IgAN community to come together, learn, share our lived experiences, inspire and empower one another.
What can participants expect?
The day will include:
- A buffet-style lunch, offering an informal space to meet others, and ease into the day ahead
- Expert-led conversations on living with IgAN, including the latest advances in care and treatment, practical lifestyle and nutrition advice, support for mental and emotional wellbeing, and discussion of the role of clinician–patient communication in the IgAN journey.
- A patient insights panel, featuring lived experiences and open conversations
- Networking opportunities to connect with others
- A community reflection, looking at what IgAN Friends has achieved so far and inviting you to help shape what’s to come.
We look forward to shaping this next chapter with you and making this event a valuable part of the IgAN Friends journey.
Join us!
If you would like to join us, please complete the registration form below — we would be delighted to welcome you. Please note that the registration form will close on May 1st.
Logistics
- Date: June 9th 2026
- Time: 12h00-17h00 CET
- Location: Brussels, Belgium
Travel and accommodation expenses may be reimbursed for eligible participants by EKPF (subject to confirmation). We strongly encourage same‑day travel where possible, as the event runs from 12:00-17:00, but hotel accommodation can be arranged if needed, based on your situation and travel feasibility. Please submit the registration form and wait for a confirmation email from us before booking any travel arrangements.
Agenda
To be confirmed.
Contact
If you have any questions, please feel free to reach out to Mónica Suengas, IgAN Friends Community Coordinator: info@ekpf.eu
Whether you’re announcing your participation or reflecting afterwards, our social media pack helps you share your involvement and raise awareness. Download it and spread the word.
