Discover the key insights and takeaways in the event report!
Thank you to everyone who joined us in Brussels on June 9th for the first in-person IgAN Friends gathering. It was a pleasure to bring together patients, healthcare professionals, researchers and patient advocates from across Europe for a day of learning, discussion and community building. It also provided space to reflect on what we’ve achieved as a community and explore where we’re heading next. More than a meeting, it was a meaningful moment for the IgAN community to come together, learn, share lived experiences, and inspire and empower one another.
Over the past year, our membership has grown and community activities have expanded, bringing us to a point where coming together in person felt both meaningful and timely as we continue to shape the next chapter of IgAN Friends.
What did the day include?
The event featured:
We are grateful to all speakers and participants who contributed to making this event such a valuable moment for the IgAN community.
Below, the agenda, speaker biographies, and presentation slides remain available for reference.
| Title | Details | Speakers | Duration |
|---|---|---|---|
| Registration & Welcome Lunch | Arrive, register and enjoy a welcome buffet lunch! A relaxed start to the day and a chance to meet fellow participants. | All participants | 12:00 - 12:45 45 min |
| Opening Remarks | EKPF representative | 12:45 - 13:00 15 min |
|
Expert Session 1 IgAN today – Scientific Advances in Diagnosis, Care and Treatment | An in-depth look at where science on IgAN stands today, covering the latest advances in diagnosis, care and treatment approaches, and what they mean for people living with IgAN. | Speakers: • Dr.Jonathan Barratt (Presentation slides) • Professor Daniel Gale (Presentation slides) • Professor Jürgen Floege (Presentation slides) Moderator: Alister Humphreys | 13:00 - 13:40 40 min |
Expert Session 2 Living with IgAN: Lifestyle & Nutrition to Feel Your Best | Practical lifestyle and nutrition strategies to help people living with IgAN feel their best, from managing energy and fatigue to supporting overall health and wellbeing. | Speaker: • Professor Marijn Speeckaert (Presentation slides) Moderator:Jan Van Cruchten | 13:40 - 14:00 20 min |
Expert Session 3 Living with IgAN: Supporting Your Mental Health | A session exploring how the burden of IgAN impacts daily life & mental health, sharing guidance on managing stress, anxiety, and the emotional challenges of living with a chronic condition. | Speakers: • Dr. Helena García (Presentation slides) • Dr. Oliver Mason Moderator: Chifen Akwah Lum | 14:10 - 14:40 30 min |
Expert Session 4 Living with IgAN: Physician–Patient Communication – How It Shapes the IgAN Journey | Exploring how communication between physicians and patients shapes the IgAN journey — and how better dialogue can build confidence, deepen understanding, and support earlier diagnosis. | Speakers: • Dr. Mercedes Velo (Presentation slides) • Emily Petrides | 14:40 - 15:10 30 min |
| Networking Session / Coffee break | An informal networking session to connect with fellow participants. | All participants | 15:10 - 15:30 20 min |
| Panel Living with IgAN – Sharing experiences and Insights | An opportunity to hear personal stories of the IgAN journey and connect through shared experience. Featuring patient panel speakers, followed by an open conversation where everyone is invited to share their perspectives. | 15:30 - 16:15 45 min |
|
| IgAN Friends Community: Journey So Far and What’s Next | A moment to reflect on what the IgAN Friends community has achieved together, and to look ahead. Participants are invited to share their thoughts and help shape the next chapter of IgAN Friends. | EKPF & All participants (Presentation slides) | 16:15 - 16:40 25 min |
| Closing Remarks | EKPF representative | 16:40 - 17:00 20 min |
|
“Even if it is raining, there is always sunshine after the rain, and with all this community and new approaches, there is a lot of sunshine coming for IgAN.”
– Event participant
If you have any questions, please feel free to reach out to Mónica Suengas, IgAN Friends Community Coordinator: info@ekpf.eu